Update on our Princess

 After two years of fighting to figure out what is wrong with Madasin, we get a diagnoses.  She indeed does have an IBD, just not sure if it is Ulcerative Colitis or Crohns Disease because of her age it is to early to tell which one it is. However they are both treated the same way. This life long disease has already tormented her for the last two years and she is only 3 years old.  We have believed for a while now that it was one of the two. But getting the official diagnoses is still hard. It hits you like a boulder coming off a cliff!!! Why does someone so young have to go through all the hell these diseases cause?
I so wish I had the ability to take all her pain and disease away from her and take it upon myself. Just so she does not have to go through anymore hell.
It is so unfair that a child so young as to deal with this and there is really nothing we can do but give maintenance medicine to give her relief.  Getting the diagnoses was a long time coming and we are relieved to finally be to that point however we are saddened by the outcome at the same time.

A personal note to my princess grand daughter Maddie:   mamma loves you so very very much peanut and I am truly sorry that you are going through this. If mamma had the ability to take it away I would in a heart beat.  When mommy said you are the strongest 3yr old we have ever met, she was so right. Princess you are our sunshine and our  inspiration get through everyday!
I promise to be here for you daily no matter what the issue is, Even after the good lord says it is my time, I will be with you to watch over you every second of the day.  Mamma loves you very much princess and I know in my heart of hearts that you are strong enough to get through life dealing with this disease.  We will be with you every step of the way.

I am probably rambling and repeating myself and if so I am sorry.  My thoughts are just running on overload right now.

That's it for now.

IBD

Hi everyone,  Well it has been a while since last posting regarding ulcerative colitis.  Madasin went to doctors in August 2010 and this time they came back with she does not have ulcerative colitis, but she has either an IBD or IBS.  They put her on Medicine for IBS, which did her no good at all.  We ended up taking her off the medicne and just waited to see what would happen.  While we have been looking for another doctor to see her regarding all of this for a second opinion.  However we can not seem to find anyone else who will see her.  In the mean time, not a lot has changed. 
We changed her diet according to her blood type and that seems to be helping with the amount of gas and belly aches that she gets. We have not been on the diet for a long time, so we are still in the beginning stages of it.  I am hoping that is helps her enough to get her through until she goes back to the doctors.  We have an appointment for November 16 2010.  We are hoping for something to be done. 

ULCERATIVE COLITIS

Ulcerative Colitis is an inflammatory bowel disease (IBD), the general name for diseases that cause inflammation in the small intestine and colon, which can cause chronic diarrhea. Ulcerative Colitis is similar to Crohns Disease which is another form of IBD.     My granddaughter was diagnosed with Ulcerative Colitis, Candida and Intestinal Infection. At the age of 19 months she got very sick, she could not swallow her food without gagging and choking on it and after two doctors and a lot of pestering they discovered she had Candida (yeast infection of the esophagus). After they gave her one dose of medicine they turned around and said she was fine and sent her home. At this time she started with chronic diarrhea (watery) with undigested food and still could not swallow her food correctly. We took her to a third doctor in a different state and after reviewing her medical records he discovered the test results indeed said she had Candida. They treated her for Candida and she continued to get worse. At the age of 22 months old they did a Colonoscopy and Endoscopy and discovered she had Ulcerative Colitis, Candida and an Intestinal Infection. According to the doctors it is rare that a child her age would have Ulcerative Colitis. They started treatment again for Candida and gave her Sulfasalizine for Ulcerative Colitis which she took for a bit. She shortly got all the side effects that came along with the Sulfasalizine so they switched her to Pentasa. She took the medication from November 2009 until July 2010. With little to no change, she has some good days and some bad ones. In July 2010 the doctor decided that he wanted to take her off all medication so that he could run some more testing and see how things are going. Well she has been off the medication for about three weeks and things are not getting any better. The diarrhea is back full force, her food is not digesting again and she is always complaining of a belly ache. The doctor is planning on doing another colonoscopy and endoscopy the beginning of August 2010

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